PROOF-LE™

Patient Reported Outcomes Of Fracture Healing (PROOF™)

Lower extremity fractures are one of the most common injuries in children. Currently we are unable to determine the child’s (or parent’s) perspectives on the child’s well-being, functioning, symptoms, and experiences with treatment because there are no validated patient-reported outcome measures for this purpose. Because of this, we decided to develop the PROOF-LE™. The purpose of the PROOF-LE™ questionnaire is to obtain the perspectives of both children and their parents in four domains: how the limb looks, how the limb feels, how the limb is working, and how it is healing. Learn more about the PROOF™ Project. Learn more about the PedFemFx™ Project.

Questionnaire

The PROOF-LE™ questionnaire is available in the following versions. Please register for a license prior to use. 

Primary Contributors

• Unni Narayanan and Roni Propp (English)

Please fill out a Translation Request Form if you are interested in culturally adapting and translating the PROOF-LE™ in your language.

Translation Guidelines

Please find a PDF of the translation guidelines here. Further readings regarding culturally adapting questionnaires:

• Cross-culture adaption of health-related quality of life measures (PDF)
• Adapting quality of life instruments (PDF)
• Guidelines for the process of cross cultural adaptation of self report measures (PDF)

Registration

An online version of the PROOF-LE™ through the REDCap database system is also available. If you are interested in using the online version, please register for a license and indicate your preference for the online version in the User Profile Form.

Manual

The PROOF-LE™ Manual and Interpretation Guide is being developed. The manual will provide information about the development and validation of the PROOF-LE™ and will describe the use and scoring of the questionnaire.