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An image of the Patient Priority Framework. Shows the interaction between patient priorities (concerns, needs, desires and expectations), interventions, and outcomes.

Patient Priority Framework

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PRIORITY-BASED SCALES FOR CHILDREN’S OUTCOMES – RESEARCH & EVALUATION (PSCORE)

PROGRAM MISSION:

1.      To understand and define the priorities of children (and their parents) living with musculoskeletal conditions;

2.      To inform the development of meaningful outcome measures; and

3.      To use these measures to evaluate the effectiveness of interventions for these children and their parents.

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Image of Dr. Unni Narayanan

PI: Dr. Unni Narayanan

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Child on parents shoulders

Outcome Measures

We have developed and validated patient and parent-reported outcome measures that incorporate priorities arising from families’ experience living with a chronic condition.

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Male teenager in a wheelchair

Registration

Register for a license to use one of our outcome measures. There is no cost to using these tools for the purpose of non-commercial research, academic or clinical practice.

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Child and caregiver smiling

Opportunities

Get involved. There are opportunities available for students, research collaborators, patients and their families.

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Our research would not be possible without the support of these funding partners: