MDCHILD™
Muscular Dystrophy Child Health Index of Life with Disabilities (MDCHILD™)
The MDCHILD™ is a condition specific measure for children with Duchenne Muscular Dystrophy (DMD) and other similar muscular conditions. This questionnaire aims to address specific health related priorities relevant to children with muscular conditions and their parents. The MDCHILD™ was derived from the CPCHILD™ questionnaire. Learn more about the MDCHILD™Project.
Questionnaire
The MDCHILD™ questionnaire is available in the following languages. Please register for a license prior to use.
MDCHILD Caregiver Versions
- MDCHILD™ Caregiver English (PDF)
MDCHILD Child Versions
- MDCHILD™ Child English (PDF)
Primary Contributors
- Unni Narayanan and Roni Propp (English)
Please fill out a Translation Request Form if you are interested in culturally adapting and translating the MDCHILD™ in your language.
Translation Guidelines
Please find a PDF of the translation guidelines here. Further readings regarding culturally adapting questionnaires:
- Cross-culture adaption of health-related quality of life measures (PDF)
- Adapting quality of life instruments (PDF)
- Guidelines for the process of cross cultural adaptation of self report measures (PDF)
Registration
An online version of the MDCHILD™ through the REDCap database system is also available. If you are interested in using the online version, please register for a license and indicate your preference for the online version in the User Profile Form.
Manual
The MDCHILD™ Manual and Interpretation Guide is being developed. The manual will provide information about the development and validation of the MDCHILD™ and will describe the use and scoring of the questionnaire.
Acknowledgements
This work has been supported by research funding from:
