Our mission
is to improve survival of children diagnosed with rare brain tumor by:
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Developing better diagnostic tools
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Developing new drugs and treatments
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Linking doctors and researchers around the world
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Connecting families with clinical trials
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Linking doctors and researchers around the world
- The RBTC collects tumor, CSF and blood and clinical data from newly diagnosed or prior patients with suspected or confirmed rare brain tumor diagnoses from global member sites
- Biomaterials are used for
- Generation of cell lines for drug studies,
- Genetic, molecular and histopathologic studies to investigate or confirm diagnoses
- Genomic studies to discover nature of tumor-causing processes
- Clinical data of rare brain tumor patients including pathology reports, treatment and imaging information are linked with molecular findings and shared with the global community to
- Improve clinical recognition and develop more specific and sensitive diagnostic assays
- Inform new approaches or types of therapies for rare brain tumor patients