The Rare Brain Tumor Consortium is an

international network of physicians and

scientists dedicated to making rare brain

tumors in children a curable disease. 

Rare paediatric brain tumors are aggressive, poorly understood, and understudied.

Our mission is to improve survival of children diagnosed with rare brain tumor by:

  • Developing better diagnostic tools
  • Developing new drugs and treatments
  • Linking doctors and researchers around the world
  • Connecting families with clinical experts

How can you help?

Physician Icon

For Physicians

To enroll your patient, you will first need informed consent from the parents.


How to Enroll Your Patient

Parents Icon

For Parents

If you would like to participate in this registry on behalf of your child, you should talk to your child’s physician.


Learn More

How we work

News & updates


Re-launch of the new RBTC website featuring a beautiful animated video! Please check out our new features! BIG THANK YOU to the INVIVO Team led by Andrea Bielecki and Katie Vatri for making this possible!

Our sponsors

SickKids Foundation
Stand Up to Cancer
Canadian Cancer Society
Nelinas Hope
Genome Canada
Brain Canada Foundation
Suri's Smile
Brain Tumour Foundation of Canada


If you wish to donate to rare brain tumor research, please direct donations to Dr. Annie Huang Rare Brain Tumor Research through the SickKids Foundation:

Donate Now