PATIENT REGISTRY

The purpose of the Registry is to collect information on children with neuroinflammatory disorders for use in research aimed to increase our knowledge of childhood neuroinflammation, and to help doctors develop better ways to diagnose and treat children with this rare condition.

NATIONAL STUDY

Progressive Degeneration from Onset in Pediatric Multiple Sclerosis: Evaluation of Clinical and Health-Related, Quality of Life, Early loss of Brain Integrity and Accelerated Immunological Senescence.

The primary outcome is to compare Health Related Quality of life (HRQol)  in both newly diagnosed, and long standing MS patients entering adulthood, to healthy controls and paediatric patients with monophasic demyelination (single episode demyelinating event). We also aim to examine health care utilization by patients and their parents to fully understand the economic impact on  health care systems.

UNDERSTANDING EBV IN MS PATIENTS

One of the goals of our research is to understand the role of viral infections, in particular the Epstein Barr virus (EBV), in the development of multiple sclerosis (MS).

Acute Flaccid Paralysis in Canadian Children

This study is a national collaborative retrospective evaluation of clinical and MRI outcomes of children presenting with non-polio acute onset flaccid paresis (AFP).