Canada’s Strategy for Patient-Oriented Research promotes engagement of patients – including survivors and informal caregivers – throughout the research process.
Knowledge produced from research currently moves too slowly from lab to bedside. By including patients in the research process, we can change this. Patients can contribute by doing things like suggesting new research questions, joining research teams, and sharing exciting research results with others.
Ultimately, patient engagement in research will help create knowledge that is more likely to be relevant, adopted, and implemented, and lead to improved health outcomes.
We are undertaking a number of activities to engage retinoblastoma patients in research. Follow the links below to find out more.