Title: Quality indicators for transition from paediatric to adult care for youth with chronic physical, developmental, and mental health conditions: a national consensus-building multi-stakeholder initiative
Funder: Canadian Institutes of Health Research (CIHR)
Role: Nominated Principal Investigator
Study summary: Our systematic review identified 169 quality indicators for transition to adult care for youth with diverse chronic conditions and highlighted key gaps in literature. Although most indicators were patient-centered outcomes, few were informed by youth and parents/caregivers, and none focused on equity. Many studies were limited to physical illnesses and excluded mental illnesses and/or developmental disabilities. Consequently, there are no robust quality indicators that can be used in transition across all chronic conditions, hindering our ability to broadly evaluate transition to adult care at a health system level in Canada. This study has led to the development of a grant to fund further work to prioritize quality indicators across chronic illness populations while engaging youth and parents/caregivers in the process.