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So far etohan has created 8 blog entries.

Transforming Behavioral Healthcare to Improve the Quality of Life for Individuals with Childhood-Onset Lupus

By |2025-11-21T18:33:41+00:00November 17th, 2025|

Co-Principal Investigators: Natoshia Cunningham, Ph.D. and Andrea Knight, MD, MSCE  Funded by: United States Department of Defense  Study Goals: To examine the effect of TEACH on psychological/functional outcomes and disease-related outcomes in youth with cSLE in real-world rheumatology settings versus medical TAU at post assessment (after 8 weeks). To determine longitudinal trajectories (over 1 year) of depressive [...]

A Multisite, Observational Study to Examine the Effects of Childhood-Onset SLE on Cognitive Functions Over Time, using the pedANAM Tool for Cognitive and Behavioral Assessments

By |2025-11-21T18:35:00+00:00November 17th, 2025|

Principal Investigator: Andrea Knight, MD, MSCE  Co-Principal Investigators: Ekemini Ogbu, MD, MSc, FAAP    Funded by: Department of Defense  Study Goals: To determine the longitudinal outcome of Neuropsychiatric SLE (NPSLE) and the trajectories of cognitive functions in pediatric SLE patients. To compare the longitudinal outcomes of children without NPSLE, including disease activity damage index, medication [...]

Characterizing Mental Health Burden of Patients and Families in Juvenile Spondyloarthritis

By |2025-11-21T18:34:02+00:00November 17th, 2025|

Principal Investigator: Andrea Knight, MD, MSCE  Co-Principal Investigator: Shirley Tse, MD, FRCPC  Funded by: SPARCC  Study Goals: To identify MH symptoms and needs for youth with JSpA, and to evaluate the feasibility of MH screening.  Description: This mixed-method study aims to identify MH symptoms and needs for youth with JSpA while also evaluating the feasibility [...]

A Randomized-Controlled Trial Evaluating the Efficacy of a Live-Online Mindfulness-Based Intervention for Children with Juvenile Idiopathic Arthritis and their Families: The Making Mindfulness Matter© in Children with Juvenile Idiopathic Arthritis Study

By |2025-11-21T18:35:41+00:00November 17th, 2025|

Co-Principal Investigators: Andrea Knight, MD, MSCE and Roberta Berard, MD, FRCPC, MSc  Additional Investigators: Michelle Batthish, MD, MSc and Karen Bax, C. Psychology  Funded by: Brain Canada & Cassie and Friends Foundation    Study Goals: To evaluate the effectiveness of a live-online mindfulness-based family intervention program, (M3©) for children with JIA and their caregiver(s).  Description: [...]

Promoting Health-Related Quality of Life in Pediatric Lupus Patients: Development and Implementation of a Tailored Brain Health Intervention

By |2025-11-17T17:53:36+00:00November 17th, 2025|

Co-Principal Investigators: Busi Zapparoli, Ph.D., C.Psych and Andrea Knight, MD, MSCE  Funded by: Garry Hurvitz Centre for Brain and Mental Health (GH CBMH), Early Career Scientist Health Outcomes Catalyst Grant  Study Goals: To develop and assess preliminary feasibility and acceptability of an intervention strategy tailored to address specific brain health needs of children and youth with cSLE. To assess the Teen Online Problem [...]

Child and Youth Mental Health in Patients with Rheumatologic Disease: Establishing a National Research Agenda

By |2025-11-17T17:54:21+00:00November 17th, 2025|

Principal Investigator: Andrea Knight, MD, MSCE  Co-Principal Investigator: Michelle Batthish, MD  Funded by: Canadian Institution of Health Research (CIHR)  Study Goals: To perform an environmental scan of current mental health care practices, patient, family, and healthcare provider experiences, and gaps in pediatric rheumatology, followed by the development of a nationally prioritized research agenda to guide future work.  Description: This study aims [...]

IMPACT: Interventions to Improve Mental Health Support in Families with Children and Young People with Chronic Rheumatological Conditions

By |2025-11-21T18:36:16+00:00November 17th, 2025|

Co-Principal Investigators: Andrea Knight, MD, MSCE and Polly Livermore, PhD  Funded by: Unfunded  Study Goals: To investigate the support needs of caregivers of children with rheumatological conditions and how these could be improved upon. To understand and compare similarities and differences between UK and Canadian families.    Description: This study will conduct 5 virtual focus [...]

The Impact of Childhood-onset Systemic Inflammatory Diseases on the Developing Brain: An Exploratory Study of Children with Juvenile Myositis and Systemic Lupus Erythematosus

By |2025-11-17T17:42:38+00:00November 17th, 2025|

Principal Investigator: Andrea Knight, MD, MSCE  Funded by: Cure JM, Lupus Research Alliance and US Department of Defense  Study Goals: To characterize cognitive and psychiatric function in children with JM, compared to patients with cSLE and healthy controls. To characterize neuroimaging metrics in children with JM, compared to patients with cSLE and healthy controls.  Description: This [...]

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