{"id":1249,"date":"2024-01-01T21:38:13","date_gmt":"2024-01-01T21:38:13","guid":{"rendered":"https:\/\/lab.research.sickkids.ca\/toulany\/?p=1249"},"modified":"2025-02-06T18:44:24","modified_gmt":"2025-02-06T18:44:24","slug":"quality-indicators-for-transition-from-paediatric-to-adult-care-for-youth-with-chronic-physical-developmental-and-mental-health-conditions-a-national-consensus-building-multi-stakeholder-initiative","status":"publish","type":"post","link":"https:\/\/lab.research.sickkids.ca\/toulany\/quality-indicators-for-transition-from-paediatric-to-adult-care-for-youth-with-chronic-physical-developmental-and-mental-health-conditions-a-national-consensus-building-multi-stakeholder-initiative\/","title":{"rendered":"Quality Indicators for Transition to Adult Care"},"content":{"rendered":"

Title:<\/strong> Quality indicators for transition from paediatric to adult care for youth with chronic physical, developmental, and mental health conditions: a national consensus-building multi-stakeholder initiative<\/p>\n

Funder: <\/strong>Canadian Institutes of Health <\/a>Research<\/a> (CIHR)<\/a><\/p>\n

Role: <\/strong>Nominated Principal Investigator: Toulany A<\/b>; Co-Principal Investigators: Mooney S, Munce SE, Stromquist L; Co-Investigators: Bailey K, Barber C, Batthish M, Cleverly K, Dimitropoulos G, Gorter J, Guttman B, Hebert M, Khodyakov D, Lo L, MacGregor L, Mukerji G, Pidduck J, Shulman R, Trbovich P.<\/p>\n

Study summary: <\/strong>Our systematic review identified 169 quality indicators for transition to adult care for youth with diverse chronic conditions and highlighted key gaps in literature. Although most indicators were patient-centered outcomes, few were informed by youth and parents\/caregivers, and none focused on equity. Many studies were limited to physical illnesses and excluded mental illnesses and\/or developmental disabilities. Consequently, there are no robust quality indicators that can be used in transition across all chronic conditions, hindering our ability to broadly evaluate transition to adult care at a health system level in Canada.\u202f\u202fThis study has led to the development of a grant to fund further work to prioritize quality indicators across chronic illness populations while engaging youth and parents\/caregivers in the process.<\/p>\n<\/div><\/div><\/div>

<\/i><\/div>

Quality Indicators for Transition Research Project Volume 4. Newsletter (PDF)<\/p><\/a><\/div>

<\/div>
Check out our progress to date on the Online Modified Delphi!<\/div><\/div><\/div>
<\/i><\/div>

Quality Indicators for Transition Research Project Volume 3. Newsletter (PDF)<\/p><\/a><\/div>

<\/div>
\n

As we prepare for the launch of the Online Modified Delphi, please take a moment to review our progress!<\/p>\n<\/div><\/div><\/div>

<\/i><\/div>

Quality Indicators for Transition Research Project Volume 2. Newsletter (PDF)<\/p><\/a><\/div>

<\/div>
\n

Seasons greetings from the Quality Indicators Research Team! Here is what’s been happening as of December 2023.<\/p>\n<\/div><\/div><\/div>

<\/i><\/div>

Quality Indicators for Transition Research Project Volume 1. Newsletter (PDF)<\/p><\/a><\/div>

<\/div>
\n

Check out the Quality Indicators for Transition Research Project’s first newsletter. The study’s status, updates, next steps and other study activities by the research team, are highlighted.<\/p>\n<\/div><\/div><\/div>

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