{"id":2806,"date":"2022-01-06T19:13:47","date_gmt":"2022-01-06T19:13:47","guid":{"rendered":"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/?page_id=2806"},"modified":"2022-01-06T19:13:47","modified_gmt":"2022-01-06T19:13:47","slug":"publications","status":"publish","type":"page","link":"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/","title":{"rendered":"Publications"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1268.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_4 1_4 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:7.68%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-widget fusion-widget-element fusion-widget-area fusion-content-widget-area wpWidget-1 wp_nav_menu_widget\" style=\"--awb-fusion-border-size:0px;--awb-fusion-border-style:solid;\"><div class=\"widget widget_nav_menu\"><div class=\"heading\"><h4 class=\"widget-title\">Outcome Measures<\/h4><\/div><div class=\"menu-outcome-measures-container\"><ul id=\"menu-outcome-measures\" class=\"menu\"><li id=\"menu-item-1783\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1783\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchild\/\">CPCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2885\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2885\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchecklist\/\">CPCHECKlist<\/a><\/li>\n<li id=\"menu-item-1787\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1787\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal\/\">GOAL&#x2122;<\/a><\/li>\n<li id=\"menu-item-1786\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1786\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal-ld\/\">GOAL-LD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2020\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2020\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/mdchild\/\">MDCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2021\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2021\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-ue\/\">PROOF \u2013 UE&#x2122;<\/a><\/li>\n<li id=\"menu-item-2022\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2022\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-le\/\">PROOF \u2013 LE&#x2122;<\/a><\/li>\n<li id=\"menu-item-1785\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1785\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/registration\/\">Apply for License\/Registration<\/a><\/li>\n<\/ul><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_3_4 3_4 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:75%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.56%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:2.56%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-one\"><h1 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:36;line-height:1.79;\">Publications<\/h1><\/div><div class=\"fusion-text fusion-text-1\"><p>Please select the title of the <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchild\/\">outcome measure<\/a> or <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cp-hip-outcomes-project\/\">project<\/a> you are interested in below to reveal a list of relevant publications.<\/p>\n<\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:2px;--awb-icon-size:13px;--awb-content-font-size:15px;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#00afd8;--awb-background-color:#ffffff;--awb-divider-color:#d1d1d1;--awb-divider-hover-color:#d1d1d1;--awb-icon-color:#ffffff;--awb-title-color:#0046ad;--awb-content-color:#333333;--awb-icon-box-color:#818a8f;--awb-toggle-hover-accent-color:#67b7e1;--awb-title-font-family:Arial, Helvetica, sans-serif;--awb-title-font-weight:400;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:Arial, Helvetica, sans-serif;--awb-content-font-style:normal;--awb-content-font-weight:400;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-2806-1\"><div class=\"fusion-panel panel-default panel-61e361600765e8dfc fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_61e361600765e8dfc\"><a aria-expanded=\"false\" aria-controls=\"61e361600765e8dfc\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#61e361600765e8dfc\" href=\"#61e361600765e8dfc\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)<\/span><\/a><\/h4><\/div><div id=\"61e361600765e8dfc\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_61e361600765e8dfc\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h3>Highlighted Publications<\/h3>\n<p><span data-contrast=\"auto\">Narayanan UG,\u00a0Fehlings\u00a0D, Weir S, Knights S, Kiran S, Campbell K. Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD). Dev Med Child Neurol. 2006 Oct 1;48(10):804-12.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Schiariti\u00a0V, Fayed N, Cieza A, Klassen A,\u00a0O&#8217;donnell\u00a0M. Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning.\u00a0Disabil\u00a0Rehabil. 2011;33(15-16):1330-9.\u00a0Epub\u00a02010 Nov 10. PMID:21067341<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Carlon S, Shields N, Yong K, Gilmore R,\u00a0Sakzewski\u00a0L, Boyd R. A systematic review of the psychometric properties of\u00a0Quality of Life\u00a0measures for school aged children with cerebral palsy. BMC\u00a0Pediatr. 2010 Nov\u00a09;10:81.\u00a0doi: 10.1186\/1471-2431-10-81. PMID: 21059270; PMCID: PMC2995480.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Waters E, Davis E, Ronen GM, Rosenbaum P, Livingston M, Saigal S. Quality of life instruments for children and adolescents with\u00a0neurodisabilities: how to choose the appropriate instrument. Dev Med Child Neurol. 2009 Aug;51(8):660-9. Review. PMID:19627340<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<h3>Additional Publications<\/h3>\n<p><span data-contrast=\"auto\">Akodu\u00a0AK, Oluwale OA, Adegoke ZO, Ahmed UA, Akinola TO. Relationship between spasticity and health related quality of life in individuals with cerebral palsy. Nig Q J Hosp Med. 2012 Apr-Jun;22(2):99-102. PMID: 23175906.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Cohen E, Lacombe-Duncan A, Spalding K,\u00a0MacInnis\u00a0J, Nicholas D, Narayanan UG, Gordon M, Margolis I, Friedman JN. Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration. BMC Health Serv Res. 2012 Oct\u00a023;12:366.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Davidson B, Schoen N,\u00a0Sedighim\u00a0S, Haldenby R, Dalziel B, Breitbart S,\u00a0Fehlings\u00a0D, Milo-Manson G, Narayanan UG, Drake JM, Ibrahim GM. Intrathecal baclofen versus selective dorsal rhizotomy for children with cerebral palsy who are\u00a0nonambulant: a systematic review. J\u00a0Neurosurg\u00a0Pediatr. 2019 Oct 18:1-9.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">DiFazio\u00a0R, Shore B, Vessey JA, Miller PE, Snyder BD. Effect of Hip Reconstructive Surgery on Health-Related Quality of Life of Non-Ambulatory Children with Cerebral Palsy. J Bone Joint Surg Am. 2016 Jul 20;98(14):1190-8.\u00a0doi: 10.2106\/JBJS.15.01063. PMID: 27440567.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">DiFazio\u00a0RL, Miller PE, Vessey JA, Snyder BD. Health-Related Quality of Life and Care Giver Burden Following Spinal Fusion in Children\u00a0With\u00a0Cerebral Palsy. Spine (Phila Pa 1976). 2017 Jun 15;42(12):E733-E739.\u00a0doi: 10.1097\/BRS.0000000000001940. PMID: 27792122.\u00a0<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Difazio RL, Vessey JA, Zurakowski D, Snyder BD. Differences in health-related quality of life and caregiver burden after hip and spine surgery in non-ambulatory children with severe cerebral palsy. Dev Med Child Neurol. 2016 Mar;58(3):298-305.\u00a0doi: 10.1111\/dmcn.12872.\u00a0Epub\u00a02015 Aug 24. PMID: 26299261.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Eguia F, Nhan DT, Shah SA, Jain A, Samdani AF,\u00a0Yaszay\u00a0B,\u00a0Pahys\u00a0JM, Marks MC, Sponseller PD; Harms Study Group. Of Major Complication Types, Only Deep Infections After Spinal Fusion Are Associated\u00a0With\u00a0Worse Health-related Outcomes in Children\u00a0With\u00a0Cerebral Palsy. Spine (Phila Pa 1976). 2020 Jul 15;45(14):993-999.\u00a0doi: 10.1097\/BRS.0000000000003463. PMID: 32150131.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Elema A,\u00a0Zalmstra\u00a0TA, Boonstra AM, Narayanan UG, Reinders-Messelink\u00a0HA, V D Putten AA. Pain and hospital admissions are important factors associated with quality of life in non-ambulatory children. Acta\u00a0Paediatr. 2016 Sep;105(9):e419-25.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Ferreira ACFM,\u00a0Eveloff\u00a0RJ, Freire M, Santos MTBR. The Impact of Oral-Gut Inflammation in Cerebral Palsy. Front Immunol. 2021 Feb\u00a025;12:619262.\u00a0doi: 10.3389\/fimmu.2021.619262. PMID: 33717115; PMCID: PMC7953843.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Giray E, \u015eim\u015fek H\u0130,\u00a0Aydo\u011fduo\u011flu\u00a0M, Kangal A\u00c7, \u00c7elik A, Kurt C, Karada\u011f\u00a0Sayg\u0131\u00a0E. Pain evaluation in a sample of Turkish children with cerebral palsy and its association with dependency level, verbal abilities, and the quality of life of patients and sociodemographic status, depression, and quality of life of their caregivers. Turk J Phys Med\u00a0Rehabil. 2018 Feb 23;64(3):222-229.\u00a0doi: 10.5606\/tftrd.2018.1871. PMID: 31453515; PMCID: PMC6657786.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Hollenbeck SM,\u00a0Yaszay\u00a0B, Sponseller PD, Bartley CE, Shah SA, Asghar J, Abel MF,\u00a0Miyanji\u00a0F, Newton PO. The Pros and Cons of Operating Early Versus Late in the Progression of Cerebral Palsy Scoliosis. Spine Deform. 2019 May;7(3):489-493.\u00a0doi: 10.1016\/j.jspd.2018.09.002. PMID: 31053320.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Hwang JH,\u00a0Varte\u00a0L, Kim HW, Lee DH, Park H. Salvage procedures for the painful chronically dislocated hip in cerebral palsy. Bone Joint J. 2016 Jan;98-B(1):137-43.\u00a0doi: 10.1302\/0301-620X.98B1.35202. PMID: 26733527.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jackson TJ,\u00a0Yaszay\u00a0B,\u00a0Pahys\u00a0JM, Singla A,\u00a0Miyanji\u00a0F, Shah SA, Sponseller PD, Newton PO, Flynn JM, Cahill PJ; Harms Study Group. Intraoperative Traction May Be a Viable Alternative to Anterior Surgery in Cerebral Palsy Scoliosis \u2265100 Degrees. J\u00a0Pediatr\u00a0Orthop. 2018 May\/Jun;38(5):e278-e284.\u00a0doi: 10.1097\/BPO.0000000000001151. Erratum in: J\u00a0Pediatr\u00a0Orthop. 2018 Aug;38(7):e417. PMID: 29521937.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jain A,\u00a0Modhia\u00a0UM, Njoku DB, Shah SA, Newton PO, Marks MC,\u00a0Bastrom\u00a0TP,\u00a0Miyanji\u00a0F, Sponseller PD. Recurrence of Deep Surgical Site Infection in Cerebral Palsy After Spinal Fusion Is Rare. Spine Deform. 2017 May;5(3):208-212.\u00a0doi: 10.1016\/j.jspd.2016.12.004. PMID: 28449964.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jain A, Sponseller PD, Shah SA, Samdani A, Cahill PJ,\u00a0Yaszay\u00a0B, Njoku DB, Abel MF, Newton PO, Marks MC, Narayanan UG; Harms Study Group. Subclassification of GMFCS level-5 cerebral palsy as a predictor of complications and health-related quality of life after spinal arthrodesis. J Bone Joint Surg Am. 2016 Nov 2;98(21):1821-1828.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jordan C, Geisel G, Alecu JE, Zhang B, Sahin M, Ebrahimi-Fakhari D. Disease Severity and Motor Impairment Correlate\u00a0With\u00a0Health-Related Quality of Life in AP-4-Associated Hereditary Spastic Paraplegia. Neurol Genet. 2021 Jul 20;7(4):e605.\u00a0doi: 10.1212\/NXG.0000000000000605. PMID: 34295967; PMCID: PMC8293284.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jung NH, Brix O, Bernius P, Schroeder AS, Kluger GJ, Beyerlein A, Weir S, von Kries R, Narayanan UG, Mall V,\u00a0Berweck\u00a0S. German Translation of the Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire: Test-Retest Reliability and Correlation with Gross Motor Function in Children with Cerebral Palsy.\u00a0Neuropediatrics. 2014 Oct;45(5):289-93.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Jung NH, Pereira B, Nehring I, Brix O, Bernius P, Schroeder SA, Kluger GJ, Koehler T, Beyerlein A, Weir S, von Kries R, Narayanan UG,\u00a0Berweck\u00a0S, Mall V. Does hip displacement influence health-related quality of life in children with cerebral palsy? Dev\u00a0Neurorehabil. 2014 Dec 1;17(6):420-5.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Kenyon LK, Farris J, Brockway K, Hannum N, Proctor K. Promoting self-exploration and function through an individualized power mobility training program.\u00a0Pediatr\u00a0Phys Ther. 2015 Summer;27(2):200-6.\u00a0doi: 10.1097\/PEP.0000000000000129. PMID: 25695192.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Kraus T,\u00a0Gegenleitner\u00a0K,\u00a0Svehlik\u00a0M, Novak M,\u00a0Steinwender\u00a0G, Singer G. Long-term therapy with intrathecal baclofen improves quality of life in children with severe spastic cerebral palsy. Eur J\u00a0Paediatr\u00a0Neurol. 2017 May;21(3):565-569.\u00a0doi: 10.1016\/j.ejpn.2017.01.016.\u00a0Epub\u00a02017 Feb 11. PMID: 28237420.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Martinez M, Kim SJ, Sabharwal S. Percutaneous Subtrochanteric Osteotomy for Painful Dislocated Hips in Patients\u00a0With\u00a0Cerebral Palsy. J\u00a0Pediatr\u00a0Orthop. 2017 Mar;37(2):111-120.\u00a0doi: 10.1097\/BPO.0000000000000600. PMID: 26214329.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Miller DJ, Flynn JJM, Pasha S,\u00a0Yaszay\u00a0B, Parent S, Asghar J, Abel MF,\u00a0Pahys\u00a0JM, Samdani A, Hwang SW, Narayanan UG, Sponseller PD, Cahill PJ, Harms Study Group. (2019). Improving Health-related Quality of Life for Patients with\u00a0Nonambulatory\u00a0Cerebral Palsy: Who Stands to Gain from Scoliosis Surgery? J\u00a0Pediatr\u00a0Orthop. 2019 Jul 12.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Miller DJ, Flynn JJM, Pasha S,\u00a0Yaszay\u00a0B, Parent S, Asghar J, Abel MF,\u00a0Pahys\u00a0JM, Samdani A, Hwang SW, Narayanan UG, Sponseller PD, Cahill PJ. Improving Health-related Quality of Life for Patients\u00a0With\u00a0Nonambulatory\u00a0Cerebral Palsy: Who Stands to Gain\u00a0From\u00a0Scoliosis Surgery? J\u00a0Pediatr\u00a0Orthop. 2020 Mar;40(3):e186-e192.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Miyanji\u00a0F, Nasto\u00a0LA, Sponseller P, Shah\u00a0S, Samdani\u00a0AF, Lonner\u00a0BS,\u00a0Yaszay\u00a0B, Clements\u00a0DH, Narayanan\u00a0UG, Newton\u00a0PO. Assessing the risk\/benefit ratio of scoliosis surgery in CP: Surgery is worth it? J Bone &amp; Joint Surgery, Am. 2018. Apr 4; 100(7):556-563.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Murphy AM, Milo-Manson G, Best A, Campbell KA,\u00a0Fehlings\u00a0D. Impact of modafinil on spasticity reduction and quality of life in children with CP. Dev Med Child Neurol. 2008 Jul;50(7):510-4.\u00a0doi: 10.1111\/j.1469-8749.2008.03019.x.\u00a0PMID: 18611200.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Pellegrino LA, Ortolan EV, Magalh\u00e3es CS, Viana AA, Narayanan UG. Brazilian Portuguese translation and cross-cultural adaptation of the \u201cCaregiver Priorities and Child Health Index of Life with Disabilities\u201d (CPCHILD\u00a9) questionnaire. BMC\u00a0Pediatr. 2014 Feb 1;14(1):30.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Pettersson K, Bjerke KM, Jahnsen R,\u00a0\u00d6hrvik\u00a0J, Rodby-Bousquet E. Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities.\u00a0Disabil\u00a0Rehabil. 2019 Jan;41(2):212-218.\u00a0doi: 10.1080\/09638288.2017.1378930.\u00a0Epub\u00a02017 Sep 19. PMID: 28927310.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Ramstad K, Jahnsen RB, Terjesen T. Severe hip displacement reduces health-related quality of life in children with cerebral palsy. Acta\u00a0Orthop. 2017 Apr;88(2):205-210.\u00a0doi: 10.1080\/17453674.2016.1262685.\u00a0Epub\u00a02016 Nov 28. PMID: 27892753; PMCID: PMC5385117.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Redouane B, Cohen E, Stephens D, Keilty K,\u00a0Mouzaki\u00a0M, Narayanan U, Moraes T, Amin R. Parental Perceptions of Quality of Life in Children on Long-Term Ventilation at Home as Compared to Enterostomy Tubes.\u00a0PLoS\u00a0One. 2016 Feb 25;11(2):e0149999.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Sewell MD,\u00a0Malagelada\u00a0F, Wallace C, Gibson A,\u00a0Noordeen\u00a0H, Tucker S, Molloy S,\u00a0Lehovsky\u00a0J. A Preliminary Study to Assess Whether Spinal Fusion for Scoliosis Improves\u00a0Carer-assessed Quality of Life for Children\u00a0With\u00a0GMFCS Level IV or V Cerebral Palsy. J\u00a0Pediatr\u00a0Orthop. 2016 Apr-May;36(3):299-304.\u00a0doi: 10.1097\/BPO.0000000000000447. PMID: 25851675.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Shore BJ, Allar BG, Miller PE, Matheney TH, Snyder BD, Fragala-Pinkham M. Measuring the Reliability and Construct Validity of the Pediatric Evaluation of Disability Inventory-Computer Adaptive Test (PEDI-CAT) in Children\u00a0With\u00a0Cerebral Palsy. Arch Phys Med\u00a0Rehabil. 2019 Jan;100(1):45-51.\u00a0doi: 10.1016\/j.apmr.2018.07.427.\u00a0Epub\u00a02018 Aug 18. PMID: 30130519.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Simsek TT,\u00a0Sertel\u00a0M, Yumin ET, Aras B, Narayanan UG. (2019). Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy. Turk\u00a0Pediatri\u00a0Arsivi. 2019 Mar;54(1):13-27.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Sung KH, Kwon SS, Cho GH, Chung CY,\u00a0Encisa\u00a0C, Menal H,\u00a0Narayanan UG, Park MS. Differences in responses to English and Korean versions of the Caregiver Priorities &amp; Child Health Index of Life with Disabilities (CPCHILD).\u00a0Health Qual Life Outcomes. 2020 Aug 17;18(1):282.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Sung KH, Kwon SS,\u00a0Narayanan UG, Chung CY, Lee KM, Lee SY, Lee DJ, Park MS. Transcultural adaptation and validation of the Korean version of Caregiver Priorities &amp; Child Health Index of Life with Disabilities (CPCHILD).\u00a0Disabil\u00a0Rehabil. 2015 Jan 1;37(7):620-4.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Thorley M, Donaghey S, Edwards P, Copeland L, Kentish M, McLennan K, Lindsley J, Gascoigne-Pees L,\u00a0Sakzewski\u00a0L, Boyd RN. Evaluation of the effects of botulinum toxin A injections when used to improve ease of care and comfort in children with cerebral palsy whom are non-ambulant: a double blind randomized controlled trial. BMC\u00a0Pediatr. 2012 Aug\u00a09;12:120.\u00a0doi: 10.1186\/1471-2431-12-120. PMID: 22873758; PMCID: PMC3472230.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Vivas AC,\u00a0Pahys\u00a0JM, Jain A, Samdani AF,\u00a0Bastrom\u00a0TP, Sponseller PD, Newton PO, Hwang SW; Harms Study Group. Early and late hospital readmissions after spine deformity surgery in children with cerebral palsy. Spine Deform. 2020 Jun;8(3):507-516.\u00a0doi: 10.1007\/s43390-019-00007-1.\u00a0Epub\u00a02020 Mar 4. PMID: 32130680.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Weaver MS, Hanna R, Hetzel S, Patterson K,\u00a0Yuroff\u00a0A, Sund S, Schultz M, Schroth M,\u00a0Halanski\u00a0MA. A Prospective, Crossover Survey Study of Child- and Proxy-Reported Quality of Life According to Spinal Muscular Atrophy Type and Medical Interventions. J Child Neurol. 2020 Apr;35(5):322-330.\u00a0doi: 10.1177\/0883073819900463.\u00a0Epub\u00a02020 Feb 3. PMID: 32009500.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Yaszay\u00a0B, Sponseller PD, Shah SA, Asghar J,\u00a0Miyanji\u00a0F, Samdani AF, Bartley C, Newton PO. Performing a Definitive Fusion in Juvenile CP Patients is a Good Surgical Option. J\u00a0Pediatr\u00a0Orthop. 2017 Dec;37(8):e488-e491.\u00a0doi: 10.1097\/BPO.0000000000000793. PMID: 27261965.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Zalmstra\u00a0T, Elema A, Huizing K, Reinders-Messelink\u00a0H, V D Putten A. Longitudinal validation of the Caregiver Priorities and Child Health Index of Life with Disabilities in a Dutch sample of\u00a0nonambulatory\u00a0children with severe disabilities. Child Care Health Dev. 2019 May;45(3):409-416.\u00a0doi: 10.1111\/cch.12663.\u00a0Epub\u00a02019 Apr 3. PMID: 30870582.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Zalmstra\u00a0TA, Elema A, Boonstra AM,\u00a0Maathuis\u00a0KG,\u00a0Narayanan UG, V D Putten AA, Reinders-Messelink\u00a0HA,\u00a0Vlaskamp\u00a0C,\u00a0Lindeboom\u00a0R. Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy.\u00a0Disabil\u00a0Rehabil. 2015 Jan1;37(5):411-6.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Zarrinkalam R, Rice J, Brook P, Russo RN. Hip displacement and overall function in severe cerebral palsy. J\u00a0Pediatr\u00a0Rehabil\u00a0Med. 2011;4(3):197-203.\u00a0doi: 10.3233\/PRM-2011-0175. PMID: 22207096.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-b5739f287405d64b2 fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_b5739f287405d64b2\"><a aria-expanded=\"false\" aria-controls=\"b5739f287405d64b2\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#b5739f287405d64b2\" href=\"#b5739f287405d64b2\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Gait Outcomes Assessment List (GOAL)<\/span><\/a><\/h4><\/div><div id=\"b5739f287405d64b2\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_b5739f287405d64b2\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><span data-contrast=\"auto\">Boyer ER, Palmer M, Walt K, Georgiadis AG, Stout JL. Validation of the Gait Outcomes Assessment List questionnaire and caregiver priorities for individuals with cerebral palsy. Dev Med Child Neurol. 2021 Sep 17.\u00a0doi: 10.1111\/dmcn.15054.\u00a0Epub\u00a0ahead of print. PMID: 34534360.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Davids J. The Gait Outcomes Assessment List (GOAL): a new tool to assess cerebral palsy. Dev Med Child Neurol. 2018 Jun;60(6):541.\u00a0doi: 10.1111\/dmcn.13732.\u00a0Epub\u00a02018 Mar 25. PMID: 29574696.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Narayanan\u00a0UG, Davidson\u00a0B, Weir\u00a0S. The Gait Outcomes Assessment List (The GOAL): Developing a Meaningful Outcome Measure for Ambulatory Children with Cerebral Palsy. Dev Med Child Neurol. 2011 Oct; 53(S5):79.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Thomason P, Tan A, Donnan A, Rodda J, Graham HK, Narayanan U. The Gait Outcomes Assessment List (GOAL): validation of a new assessment of gait function for children with cerebral palsy. Dev Med Child Neurol. 2018 Jun;60(6):618-623.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-f3f11a911e81a918e fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_f3f11a911e81a918e\"><a aria-expanded=\"false\" aria-controls=\"f3f11a911e81a918e\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#f3f11a911e81a918e\" href=\"#f3f11a911e81a918e\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Gait Outcomes Assessment List Module for Children with Lower Limb Differences (GOAL-LD)<\/span><\/a><\/h4><\/div><div id=\"f3f11a911e81a918e\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_f3f11a911e81a918e\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><span data-contrast=\"auto\">Dermott JA, Wright FV,\u00a0Salbach\u00a0NM,\u00a0Narayanan UG.\u00a0Development of the gait outcomes assessment list for lower-limb differences (GOAL-LD) questionnaire: a child and parent reported outcome measure.\u00a0Health Qual Life Outcomes. 2021 May 5;19(1):139.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Griffiths AL, Donnan LT, Iobst CA, Kelley SP, Bouchard M, Narayanan UG. The Gait Outcomes Assessment List for Children\u00a0With\u00a0Lower Limb Difference (GOAL-LD): Assessment of Reliability and Validity. J\u00a0Pediatr\u00a0Orthop. 2021 Jun 3.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-8297a3a0d21e4996c fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_8297a3a0d21e4996c\"><a aria-expanded=\"false\" aria-controls=\"8297a3a0d21e4996c\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#8297a3a0d21e4996c\" href=\"#8297a3a0d21e4996c\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Muscular Dystrophy Child Health Index of Life with Disabilities (MD-CHILD)<\/span><\/a><\/h4><\/div><div id=\"8297a3a0d21e4996c\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_8297a3a0d21e4996c\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><span class=\"TextRun SCXW69490809 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">Propp R, McAdam L, Davis A,\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">Salbach<\/span><span class=\"NormalTextRun SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0N, Weir S,\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">Encisa<\/span><span class=\"NormalTextRun SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0C,\u00a0<\/span><span class=\"NormalTextRun SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">Narayanan, UG.\u00a0<\/span><span class=\"NormalTextRun SCXW69490809 BCX0\" data-ccp-parastyle=\"No Spacing\">(2019). Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy. Dev Med Child Neurol. 2019 Jan; 61(1): 75-81.<\/span><\/span><span class=\"EOP SCXW69490809 BCX0\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-536cd967119d46d6d fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_536cd967119d46d6d\"><a aria-expanded=\"false\" aria-controls=\"536cd967119d46d6d\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#536cd967119d46d6d\" href=\"#536cd967119d46d6d\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Patient Reported Outcomes Of Fracture Healing (PROOF)<\/span><\/a><\/h4><\/div><div id=\"536cd967119d46d6d\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_536cd967119d46d6d\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><span class=\"TextRun SCXW102581222 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">Narayanan U, <\/span><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">Patel S, Propp R, Camp M, Murphy A. Development and Content Validation of the Patient-Reported Outcomes of Fracture Healing (PROOF). 38<\/span><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">th<\/span><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0Annual Meeting of the European Pediatric\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW102581222 BCX0 DefaultHighlightTransition\" data-ccp-parastyle=\"No Spacing\">Orthopaedic<\/span><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0Society (EPOS), Tel Aviv, Israel. 2019 J Child\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">Orthop<\/span><span class=\"NormalTextRun SCXW102581222 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0suppl.<\/span><\/span><span class=\"EOP SCXW102581222 BCX0\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-c028a84a71ab60ef5 fusion-toggle-no-divider fusion-toggle-boxed-mode\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_c028a84a71ab60ef5\"><a aria-expanded=\"false\" aria-controls=\"c028a84a71ab60ef5\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-2806-1\" data-target=\"#c028a84a71ab60ef5\" href=\"#c028a84a71ab60ef5\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Cerebral Palsy Hip Outcomes Project (CHOP)<\/span><\/a><\/h4><\/div><div id=\"c028a84a71ab60ef5\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_c028a84a71ab60ef5\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><span class=\"TextRun SCXW102507743 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Shore BJ, Martinkevich P, Riazi M, Baird E,\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Encisa<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0C, Willoughby K,\u00a0<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Narayanan UG<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">; CHOP Investigative Team.\u00a0<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Reliability of Radiographic Assessments of the Hip in Cerebral Palsy.<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0J\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Pediatr<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2 SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">Orthop<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">. 2019 Aug;39(7<\/span><span class=\"NormalTextRun ContextualSpellingAndGrammarErrorV2 SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">):e<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">536-e541<\/span><span class=\"NormalTextRun SCXW102507743 BCX0\" data-ccp-parastyle=\"No Spacing\">.<\/span><\/span><span class=\"EOP SCXW102507743 BCX0\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":373,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2806","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Publications - PSCORE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Publications\" \/>\n<meta property=\"og:url\" content=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/\" \/>\n<meta property=\"og:site_name\" content=\"PSCORE\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"17 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/\",\"url\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/\",\"name\":\"Publications - PSCORE\",\"isPartOf\":{\"@id\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/#website\"},\"datePublished\":\"2022-01-06T19:13:47+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/publications\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Publications\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/#website\",\"url\":\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/\",\"name\":\"PSCORE\",\"description\":\"Priority-Based Scales for Children\u2019s Outcomes Research &amp; 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