{"id":2002,"date":"2017-12-18T20:12:07","date_gmt":"2017-12-18T20:12:07","guid":{"rendered":"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/?page_id=2002"},"modified":"2026-04-01T19:52:47","modified_gmt":"2026-04-01T19:52:47","slug":"mdchild","status":"publish","type":"page","link":"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/mdchild\/","title":{"rendered":"MDCHILD&#x2122;"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 hundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-overflow:visible;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_4 1_4 fusion-one-fourth fusion-column-first\" style=\"--awb-bg-size:cover;width:22%; margin-right: 4%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-widget-area awb-widget-area-element fusion-widget-area-1 fusion-content-widget-area\" style=\"--awb-title-size:18px;--awb-title-color:#333333;--awb-padding:0px 0px 0px 0px;\"><div id=\"nav_menu-5\" class=\"widget widget_nav_menu\"><div class=\"heading\"><h4 class=\"widget-title\">Outcome Measures<\/h4><\/div><div class=\"menu-outcome-measures-container\"><ul id=\"menu-outcome-measures\" class=\"menu\"><li id=\"menu-item-1783\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1783\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchild\/\">CPCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2885\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2885\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchecklist\/\">CPCHECKlist<\/a><\/li>\n<li id=\"menu-item-1787\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1787\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal\/\">GOAL&#x2122;<\/a><\/li>\n<li id=\"menu-item-1786\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1786\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal-ld\/\">GOAL-LD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2020\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2020\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/mdchild\/\">MDCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2021\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2021\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-ue\/\">PROOF \u2013 UE&#x2122;<\/a><\/li>\n<li id=\"menu-item-2022\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2022\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-le\/\">PROOF \u2013 LE&#x2122;<\/a><\/li>\n<li id=\"menu-item-1785\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1785\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/registration\/\">Apply for License\/Registration<\/a><\/li>\n<\/ul><\/div><\/div><div class=\"fusion-additional-widget-content\"><\/div><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_3_4 3_4 fusion-three-fourth fusion-column-last\" style=\"--awb-bg-size:cover;width:74%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-three\" style=\"--awb-sep-color:#84d6e8;\"><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:22;--minFontSize:22;line-height:1.62;\"><h1>MDCHILD&#x2122;<\/h1><\/h3><\/div><div class=\"fusion-text fusion-text-1\"><h2>Muscular Dystrophy Child Health Index of Life with Disabilities (MDCHILD&#x2122;)<\/h2>\n<\/div><div class=\"fusion-text fusion-text-2\"><p>The MDCHILD<span style=\"font-weight: 400\"><b>&#x2122;\u00a0<\/b>is a condition specific measure for children with Duchenne Muscular Dystrophy (DMD) and other similar muscular conditions. This questionnaire aims to address specific health related priorities relevant to children with muscular conditions and their parents. The MDCHILD<b>&#x2122;\u00a0<\/b>was derived from the CPCHILD<b>&#x2122;\u00a0<\/b>questionnaire. L<\/span>earn more about the <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/mdchild-project\/\"><span style=\"color: #00b0d8\">MDCHILD<span style=\"font-weight: 400\"><b>&#x2122;<\/b>Project<\/span><\/span><\/a>.<\/p>\n<\/div><div class=\"fusion-text fusion-text-3\"><h4><strong>Questionnaire<\/strong><\/h4>\n<\/div><div class=\"fusion-text fusion-text-4\"><p><span style=\"font-weight: 400\">The MDCHILD<b>&#x2122;<\/b> questionnaire is available in the following languages. Please<a style=\"color: #00afd8\" href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/registration\/\"> register for a license<\/a> prior to use. <\/span><span>An online version of the MDCHILD&#x2122; through the REDCap database system is also available. If you are interested in using the online version, please register for a license and indicate your preference for the online version in the User Profile Form.<\/span><\/p>\n<\/div><div class=\"fusion-text fusion-text-5\"><div class=\"table-2\">\n<p><strong>MDCHILD Caregiver Versions<\/strong><\/p>\n<ul>\n<li>MDCHILD<strong>&#x2122;<\/strong> Caregiver <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/MDCHILD_Parent_English_Watermarked.pdf\"><span style=\"color: #00afd8\"><strong>English<\/strong> (PDF)<\/span><\/a><\/li>\n<\/ul>\n<p><strong>MDCHILD Child Versions<\/strong><\/p>\n<ul>\n<li>MDCHILD<strong>&#x2122;<\/strong> Child <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/MDCHILD_Child_English_Watermarked.pdf\"><span style=\"color: #00b0d8\"><strong>English<\/strong> (PDF)<\/span><\/a><\/li>\n<\/ul>\n<p><strong>Primary Contributors<\/strong><\/p>\n<ul>\n<li>Unni Narayanan and Roni Propp (English)<\/li>\n<\/ul>\n<\/div>\n<p><font color=\"#00b0d8\"><span>Please fill out a<\/span> <a href=\"https:\/\/redcapexternal.research.sickkids.ca\/surveys\/?s=M87WK9FE8WENL8CH\">Translation Request Form<\/a><\/font> if you are interested in culturally adapting and translating the MDCHILD&#x2122; in your language.<\/p>\n<h4 data-fontsize=\"18\" style=\"--fontSize: 18;line-height: 1.33;--minFontSize: 18\" data-lineheight=\"23.94px\" class=\"fusion-responsive-typography-calculated\"><b>Translation Guidelines<\/b><\/h4>\n<p>Please find <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Translation-Guidelines.pdf\"><span style=\"color: #00b0d8\">a PDF of the translation guidelines here<\/span><\/a>. Further readings regarding culturally adapting questionnaires:<\/p>\n<ul>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Guillemin-Crosscultural-Adaptation1993.pdf\"><span style=\"color: #00b0d8\">Cross-culture adaption of health-related quality of life measures (PDF)<\/span><\/a><\/li>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Swaine-Verdier-et-al.pdf\"><span style=\"color: #00b0d8\">Adapting quality of life instruments (PDF)<\/span><\/a><\/li>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Beaton2000-GuidelinesCrossCulturalAdaptation.pdf\"><span style=\"color: #00b0d8\">Guidelines for the process of cross cultural adaptation of self report measures (PDF)<\/span><\/a><\/li>\n<\/ul>\n<h4 data-fontsize=\"18\" style=\"--fontSize: 18;line-height: 1.33;--minFontSize: 18\" data-lineheight=\"23.94px\" class=\"fusion-responsive-typography-calculated\"><b>Manual<\/b><\/h4>\n<p>The MDCHILD&#x2122; Manual and Interpretation Guide is being developed. The manual will provide information about the development and validation of the MDCHILD&#x2122; and will describe the use and scoring of the questionnaire.<\/p>\n<\/div><div class=\"fusion-text fusion-text-6\"><h4><b>Acknowledgements<\/b><\/h4>\n<p>This\u00a0work has been supported by research funding from:<\/p>\n<p><img decoding=\"async\" class=\"alignnone wp-image-2139 \" src=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/MDCANADA.jpg\" alt=\"Muscular Dystrophy Canada Logo\" width=\"194\" height=\"71\" \/> <img decoding=\"async\" class=\"alignnone wp-image-1406 \" src=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/POSNA-e1474250015458.jpg\" alt=\"POSNA (Pediatric Orthopaedic Society of North America) Logo\" width=\"237\" height=\"78\" \/><\/p>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":156,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2002","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>MDCHILD&#x2122; 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