{"id":1473,"date":"2016-09-19T02:07:30","date_gmt":"2016-09-19T02:07:30","guid":{"rendered":"http:\/\/cpcore.ca\/?page_id=1473"},"modified":"2024-11-08T15:30:08","modified_gmt":"2024-11-08T15:30:08","slug":"goal-ld","status":"publish","type":"page","link":"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal-ld\/","title":{"rendered":"GOAL-LD"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 hundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-overflow:visible;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_4 1_4 fusion-one-fourth fusion-column-first\" style=\"--awb-bg-size:cover;width:22%; margin-right: 4%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-widget-area awb-widget-area-element fusion-widget-area-1 fusion-content-widget-area\" style=\"--awb-title-size:18px;--awb-title-color:#333333;--awb-padding:0px 0px 0px 0px;\"><div id=\"nav_menu-5\" class=\"widget widget_nav_menu\"><div class=\"heading\"><h4 class=\"widget-title\">Outcome Measures<\/h4><\/div><div class=\"menu-outcome-measures-container\"><ul id=\"menu-outcome-measures\" class=\"menu\"><li id=\"menu-item-1783\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1783\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchild\/\">CPCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2885\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2885\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/cpchecklist\/\">CPCHECKlist<\/a><\/li>\n<li id=\"menu-item-1787\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1787\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal\/\">GOAL&#x2122;<\/a><\/li>\n<li id=\"menu-item-1786\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1786\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal-ld\/\">GOAL-LD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2020\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2020\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/mdchild\/\">MDCHILD&#x2122;<\/a><\/li>\n<li id=\"menu-item-2021\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2021\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-ue\/\">PROOF \u2013 UE&#x2122;<\/a><\/li>\n<li id=\"menu-item-2022\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-2022\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/proof-le\/\">PROOF \u2013 LE&#x2122;<\/a><\/li>\n<li id=\"menu-item-1785\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-1785\"><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/registration\/\">Apply for License\/Registration<\/a><\/li>\n<\/ul><\/div><\/div><div class=\"fusion-additional-widget-content\"><\/div><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_3_4 3_4 fusion-three-fourth fusion-column-last\" style=\"--awb-bg-size:cover;width:74%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-sep-color:#84d6e8;\"><h1 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:36;line-height:1.79;\">GOAL-LD&#x2122;<\/h1><\/div><div class=\"fusion-text fusion-text-1\"><h2>Development and Sensibility Evaluation for the Gait Outcomes Assessment List Module for Children with Lower Limb Differences (GOAL-LD&#x2122;)<\/h2>\n<h4><div class=\"fusion-text fusion-text-1\"><\/div><\/h4>\n<\/div><div class=\"fusion-text fusion-text-3\"><p><span style=\"font-weight: 400\">Functional evaluation of children with lower limb differences (LDs) is limited due to a lack of appropriate outcome measures for this population. This study developed a module of the Gait Outcomes Assessment List (GOAL&#x2122;) questionnaire that is specific and sensible for use with children with LDs (GOAL-LD&#x2122;). \u00a0An iterative adaptation and sensibility evaluation of the GOAL, initially developed for use with ambulatory children with cerebral palsy (CP), was informed by field-testing this questionnaire with children having an LD and their parents, conducting cognitive interviews with these children, and administering an e-Survey to healthcare professionals. Items related to basic activities of daily living and independence were eliminated as they had a ceiling effect despite modifications to make them more challenging. \u00a0Items related to pain\/discomfort\/fatigue, and body image\/self-esteem were the highest priority items across all versions of the questionnaire. Ultimately 22 of the original 50 GOAL items were retained, 16 modified, and six new items added in the final questionnaire iteration (GOAL-LD&#x2122; 2.0). This study supports the GOAL-LD&#x2122; 2.0 as a promising new outcome measure for comprehensively evaluating the function and priorities of children with LDs, for both research and clinical purposes. Learn more about the <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/goal-ld-project\/\"><span style=\"color: #00b0d8\">GOAL-LD project<\/span><\/a>.<\/span><\/p>\n<\/div><div class=\"fusion-text fusion-text-4\"><h3>Questionnaire<strong><br \/>\n<\/strong><\/h3>\n<\/div><div class=\"fusion-text fusion-text-5\"><p>A watermarked version of the GOAL-LD\u2122 questionnaire can be provided upon request, however, please note that validation work is ongoing.<\/p>\n<p><strong>GOAL-LD Versions <\/strong><\/p>\n<ul>\n<li>English: validation in progress<\/li>\n<\/ul>\n<p><strong>Primary Contributors<\/strong><\/p>\n<ul>\n<li>Jennifer Dermott (English)<\/li>\n<\/ul>\n<p>Please fill out a <a href=\"https:\/\/redcapexternal.research.sickkids.ca\/surveys\/?s=M87WK9FE8WENL8CH\">Translation Request Form<\/a> if you are interested in culturally adapting and translating the GOAL-LD\u2122 in your language.<\/p>\n<h3 data-fontsize=\"22\" style=\"--fontSize: 22;line-height: 1.62;--minFontSize: 22\" data-lineheight=\"35.64px\" class=\"fusion-responsive-typography-calculated\">Translation Guidelines<\/h3>\n<p>Please find <a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Translation-Guidelines.pdf\"><span style=\"color: #00b0d8\">a PDF of the translation guidelines here<\/span><\/a>. Further readings regarding culturally adapting questionnaires:<\/p>\n<ul>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Guillemin-Crosscultural-Adaptation1993.pdf\"><span style=\"color: #00b0d8\">Cross-culture adaption of health-related quality of life measures (PDF)<\/span><\/a><\/li>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Swaine-Verdier-et-al.pdf\"><span style=\"color: #00b0d8\">Adapting quality of life instruments (PDF)<\/span><\/a><\/li>\n<li><a href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/Beaton2000-GuidelinesCrossCulturalAdaptation.pdf\"><span style=\"color: #00b0d8\">Guidelines for the process of cross cultural adaptation of self report measures (PDF)<\/span><\/a><\/li>\n<\/ul>\n<\/div><div class=\"fusion-text fusion-text-6\"><h3>Registration<\/h3>\n<p>An online version of the\u00a0GOAL-LD&#x2122;\u00a0through the REDCap database system is also available. If you are interested in using the online version, please<span style=\"color: #00b0d8\">\u00a0<a style=\"color: #00b0d8\" href=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/registration\/\">register for a license<\/a><\/span> and indicate your preference for the online version in the User Profile Form.<\/p>\n<h3>Manual<\/h3>\n<p>The GOAL-LD&#x2122; Manual and Interpretation Guide is being developed. The manual will provide information about the development and validation of the GOAL-LD&#x2122; and will describe the use and scoring of the questionnaire.<\/p>\n<h3>Acknowledgements<\/h3>\n<\/div><div class=\"fusion-text fusion-text-7\"><p>This\u00a0work has been supported by research funding from:<\/p>\n<p><img decoding=\"async\" class=\"alignnone wp-image-2176 \" src=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2017\/12\/U-OF-T-LOGO-e1630615142961.png\" alt=\"University of Toronto Logo\" width=\"172\" height=\"63\" \/> <img decoding=\"async\" class=\"alignnone wp-image-1411 \" src=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation.jpg\" alt=\"Holland Bloorview Kids Rehabilitation Hospital Foundation Logo\" width=\"214\" height=\"65\" srcset=\"https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-200x61.jpg 200w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-300x91.jpg 300w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-400x121.jpg 400w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-600x182.jpg 600w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-768x233.jpg 768w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-800x243.jpg 800w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-1024x311.jpg 1024w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation-1200x364.jpg 1200w, https:\/\/lab.research.sickkids.ca\/pscoreprogram\/wp-content\/uploads\/sites\/72\/2016\/09\/HB-Foundation.jpg 1630w\" sizes=\"(max-width: 214px) 100vw, 214px\" \/><\/p>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><div class=\"fusion-builder-row fusion-row\"><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1473","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.0) - 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