{"id":1589,"date":"2025-11-17T17:53:36","date_gmt":"2025-11-17T17:53:36","guid":{"rendered":"https:\/\/lab.research.sickkids.ca\/knight\/?p=1589"},"modified":"2025-11-17T17:53:36","modified_gmt":"2025-11-17T17:53:36","slug":"promoting-health-related-quality-of-life-in-pediatric-lupus-patients-development-and-implementation-of-a-tailored-brain-health-intervention","status":"publish","type":"post","link":"https:\/\/lab.research.sickkids.ca\/knight\/promoting-health-related-quality-of-life-in-pediatric-lupus-patients-development-and-implementation-of-a-tailored-brain-health-intervention\/","title":{"rendered":"Promoting Health-Related Quality of Life in Pediatric Lupus Patients: Development and Implementation of a Tailored Brain Health Intervention"},"content":{"rendered":"<p><b><span data-contrast=\"none\">Co-Principal Investigators:<\/span><\/b><span data-contrast=\"none\">\u202fBusi\u00a0Zapparoli, Ph.D.,\u00a0C.Psych and\u00a0Andrea Knight, MD, MSCE<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:300,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">Funded by:\u202f<\/span><\/b><span data-contrast=\"none\">Garry Hurvitz Centre for Brain and Mental Health (GH CBMH), Early Career Scientist Health Outcomes Catalyst Grant<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:300,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">Study Goals:<\/span><\/b><span data-contrast=\"none\">\u202fTo develop and assess preliminary feasibility and acceptability of an intervention strategy tailored to address specific brain health needs of children and youth with\u00a0cSLE.\u00a0To assess the Teen Online Problem Solving (TOPS) intervention\u2019s impact on brain health.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:300,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">Description:<\/span><\/b><span data-contrast=\"none\">\u202fThis\u00a0project will take a patient-informed participatory action approach to\u00a0develop and test\u00a0an intervention tailored to support the specific brain health needs of children and adolescents with\u00a0cSLE.\u00a0Using input from patients and caregivers, the intervention is tailored to support cognitive function, mental health, and overall well-being. Participants will join virtual sessions and complete pre- and post-program assessments to help refine the intervention and evaluate its impact.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:300,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">Impact:<\/span><\/b><span data-contrast=\"none\">\u202fCurrently, there are no interventions specifically designed to target brain health in patients with\u00a0cSLE, despite\u00a0clear evidence\u00a0of this need.\u00a0This study\u2019s intervention has the potential to lead to post-treatment improvements in brain health and\u00a0may positively influence\u00a0multiple\u00a0areas\u00a0of patients\u2019 lives, including cognition, academic and career\u00a0outcomes, interpersonal relationships, mental and physical\u00a0well-being, and medication adherence.<\/span><span 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[&#8230;]<\/p>\n","protected":false},"author":503,"featured_media":1602,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[14,13],"tags":[],"class_list":["post-1589","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-current","category-studies"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Promoting Health-Related Quality of Life in Pediatric Lupus Patients: Development and Implementation of a Tailored Brain Health Intervention - Knight Lab<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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