Power Over Pain for Primary Caregivers<\/h1><\/div>Supporting those who support\u2014because caregivers’ health matters too.<\/p><\/div><\/div><\/div>
![\"A](\"https:\/\/lab.research.sickkids.ca\/iouch\/wp-content\/uploads\/sites\/33\/2025\/03\/computer-with-power-over-pain-logo.png\" "\\"computer")
<\/span><\/div><\/div><\/div><\/div><\/div><\/lite-youtube><\/div><\/div><\/div><\/div><\/div><\/div><\/i><\/div>What is Power Over Pain for Primary Caregivers (PoPPc)?<\/h2><\/div><\/div>\nPoPPc is a multi-phase, mulit-national (Canada and Australia) research program dedicated to developing, testing, and implementing a clinician-integrated digital health platform and knowledge hub for caregivers of children with chronic pain.<\/p>\n
It is envisioned as a\u00a0\u2018one-stop shop\u2019<\/strong>\u00a0digital health and knowledge hub designed to provide caregivers with free, accessible, evidence-based support targeting their own physical, mental, and social health and well-being needs.<\/p>\n<\/div><\/div><\/div><\/i><\/div>How is PoPPc being developed?<\/h2><\/div><\/div>\nThis co-design research program aims to be developed through rigorous usability testing, implementation research alongside caregivers, clinicians, and digital health experts.<\/p>\n<\/div><\/div><\/div>
<\/i><\/div>What does PoPPc aim to do?<\/h2><\/div><\/div>PoPPc aims to fill a critical gap in caregiver-targeted support. Ensuring accessible, evidence-based resources are available to empower caregivers and improve family well-being and healthcare integration.<\/div><\/div><\/div><\/div><\/div><\/div><\/div>![\"A](\"https:\/\/lab.research.sickkids.ca\/iouch\/wp-content\/uploads\/sites\/33\/2025\/03\/thumbnail_image-1.png\" "\\"thumbnail_image")
<\/span><\/div><\/div><\/div>Mission & vision<\/h2><\/div>PoPPc aims to prioritize caregiver well-being as a core component of paediatric pain care. By integrating digital health solutions specifically addressing caregiver health and well-being, into routine health care, PoPPc seeks to reduce caregiver stress and burnout, improve family functioning, and enhance child health outcomes.<\/p>\n
Our vision is to create a scalable, inclusive, and evidence-based platform that ensures all caregivers\u2014regardless of location or background\u2014have access to the support they need, when they need it\u200b.<\/p>\n<\/div><\/div><\/div>
Research & evidence<\/h2><\/div><\/div><\/div>PoPPc Team<\/h3><\/div><\/div>\nPoPPc is led by Dr. Nicole Pope in collaboration with Dr. Jennifer Stinson, parent partners with lived experience and a multidisciplinary team of experts in paediatric pain, digital health, and caregiver advocacy.<\/p>\n
Our research partners include leading Australian and Canadian institutions, ensuring a global perspective on digital caregiver support. The project is backed by a strong network of clinicians, digital health researchers, organizational partners (‘SKIP’, ‘Child Unlimited’), and caregivers with lived experience to ensure its real-world relevance and impact\u200b.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div>
Scoping review<\/h3><\/div><\/div>\nMapped 73 studies on virtual caregiver support and identified potentially relevant, evidence-based resources to integrate into PoPPc.<\/p>\n
We generated an Evidence and Gap Map from this review and revealed a lack of interventions addressing caregivers’ own health needs, including mental well-being, pain management, and systemic support.<\/p>\n<\/div><\/div><\/div><\/div><\/div>
Qualitative needs assessment<\/h3><\/div><\/div>\nIn-depth interviews with 32 caregivers across Australia and Canada highlighted emotional distress, social isolation, role strain, and barriers to accessing tailored support. These insights directly informed PoPPc\u2019s co-design, accessibility, and content strategy.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div>
Publications<\/h3><\/div><\/div>\nPoPPc\u2019s research findings have been published in peer-reviewed journals, contributing to the global evidence base on caregiver-targeted digital health interventions. Explore our latest publications and the Evidence and Gap Map, which visualizes gaps in existing support solutions.<\/p>\n[Coming Soon!]\n<\/div><\/div><\/div><\/div><\/div><\/div>
Opportunities to participate<\/h2><\/div>Are you a caregiver, researcher, health-care provider, or organization interested in partnering with PoPPc?<\/i><\/strong><\/p>\nPoPPc actively engages caregivers, clinicians, and digital health experts to co-design the platform. <\/span>Explore opportunities below for collaboration, research studies, and digital health integration.<\/span>
\n<\/i><\/strong><\/p>\n<\/div><\/i><\/i><\/span>For researchers<\/span><\/a><\/h3><\/div>\nCollaborate on cutting-edge digital health research to improve caregiver support. Connect with us for partnership opportunities and ongoing studies.<\/p>\n<\/div><\/div><\/div>
<\/i><\/i><\/span>For health-care providers<\/span><\/a><\/h3><\/div>\nIntegrate PoPPc into your practice to enhance caregiver well-being. Stay informed about implementation strategies and clinician resources.<\/p>\n<\/div><\/div><\/div>
<\/i><\/i><\/span>For caregivers<\/span><\/a><\/h3><\/div>\nYour voice matters! Participate in co-design workshops, usability testing, or advocacy efforts to help shape PoPPc.<\/p>\n<\/div><\/div><\/div>
Supporting those who support\u2014because caregivers’ health matters too.<\/p><\/div><\/div><\/div>
<\/span><\/div><\/div><\/div><\/div><\/div>What is Power Over Pain for Primary Caregivers (PoPPc)?<\/h2><\/div><\/div>\nPoPPc is a multi-phase, mulit-national (Canada and Australia) research program dedicated to developing, testing, and implementing a clinician-integrated digital health platform and knowledge hub for caregivers of children with chronic pain.<\/p>\n
It is envisioned as a\u00a0\u2018one-stop shop\u2019<\/strong>\u00a0digital health and knowledge hub designed to provide caregivers with free, accessible, evidence-based support targeting their own physical, mental, and social health and well-being needs.<\/p>\n<\/div><\/div><\/div><\/i><\/div>How is PoPPc being developed?<\/h2><\/div><\/div>\nThis co-design research program aims to be developed through rigorous usability testing, implementation research alongside caregivers, clinicians, and digital health experts.<\/p>\n<\/div><\/div><\/div>
<\/i><\/div>What does PoPPc aim to do?<\/h2><\/div><\/div>PoPPc aims to fill a critical gap in caregiver-targeted support. Ensuring accessible, evidence-based resources are available to empower caregivers and improve family well-being and healthcare integration.<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/span><\/div><\/div><\/div>Mission & vision<\/h2><\/div>PoPPc aims to prioritize caregiver well-being as a core component of paediatric pain care. By integrating digital health solutions specifically addressing caregiver health and well-being, into routine health care, PoPPc seeks to reduce caregiver stress and burnout, improve family functioning, and enhance child health outcomes.<\/p>\n
Our vision is to create a scalable, inclusive, and evidence-based platform that ensures all caregivers\u2014regardless of location or background\u2014have access to the support they need, when they need it\u200b.<\/p>\n<\/div><\/div><\/div>
Research & evidence<\/h2><\/div><\/div><\/div>PoPPc Team<\/h3><\/div><\/div>\nPoPPc is led by Dr. Nicole Pope in collaboration with Dr. Jennifer Stinson, parent partners with lived experience and a multidisciplinary team of experts in paediatric pain, digital health, and caregiver advocacy.<\/p>\n
Our research partners include leading Australian and Canadian institutions, ensuring a global perspective on digital caregiver support. The project is backed by a strong network of clinicians, digital health researchers, organizational partners (‘SKIP’, ‘Child Unlimited’), and caregivers with lived experience to ensure its real-world relevance and impact\u200b.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div>
Scoping review<\/h3><\/div><\/div>\nMapped 73 studies on virtual caregiver support and identified potentially relevant, evidence-based resources to integrate into PoPPc.<\/p>\n
We generated an Evidence and Gap Map from this review and revealed a lack of interventions addressing caregivers’ own health needs, including mental well-being, pain management, and systemic support.<\/p>\n<\/div><\/div><\/div><\/div><\/div>
Qualitative needs assessment<\/h3><\/div><\/div>\nIn-depth interviews with 32 caregivers across Australia and Canada highlighted emotional distress, social isolation, role strain, and barriers to accessing tailored support. These insights directly informed PoPPc\u2019s co-design, accessibility, and content strategy.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div>
Publications<\/h3><\/div><\/div>\nPoPPc\u2019s research findings have been published in peer-reviewed journals, contributing to the global evidence base on caregiver-targeted digital health interventions. Explore our latest publications and the Evidence and Gap Map, which visualizes gaps in existing support solutions.<\/p>\n[Coming Soon!]\n<\/div><\/div><\/div><\/div><\/div><\/div>
Opportunities to participate<\/h2><\/div>Are you a caregiver, researcher, health-care provider, or organization interested in partnering with PoPPc?<\/i><\/strong><\/p>\nPoPPc actively engages caregivers, clinicians, and digital health experts to co-design the platform. <\/span>Explore opportunities below for collaboration, research studies, and digital health integration.<\/span>
\n<\/i><\/strong><\/p>\n<\/div><\/i><\/i><\/span>For researchers<\/span><\/a><\/h3><\/div>\nCollaborate on cutting-edge digital health research to improve caregiver support. Connect with us for partnership opportunities and ongoing studies.<\/p>\n<\/div><\/div><\/div>
<\/i><\/i><\/span>For health-care providers<\/span><\/a><\/h3><\/div>\nIntegrate PoPPc into your practice to enhance caregiver well-being. Stay informed about implementation strategies and clinician resources.<\/p>\n<\/div><\/div><\/div>
<\/i><\/i><\/span>For caregivers<\/span><\/a><\/h3><\/div>\nYour voice matters! Participate in co-design workshops, usability testing, or advocacy efforts to help shape PoPPc.<\/p>\n<\/div><\/div><\/div>
PoPPc is a multi-phase, mulit-national (Canada and Australia) research program dedicated to developing, testing, and implementing a clinician-integrated digital health platform and knowledge hub for caregivers of children with chronic pain.<\/p>\n
It is envisioned as a\u00a0\u2018one-stop shop\u2019<\/strong>\u00a0digital health and knowledge hub designed to provide caregivers with free, accessible, evidence-based support targeting their own physical, mental, and social health and well-being needs.<\/p>\n<\/div><\/div><\/div> This co-design research program aims to be developed through rigorous usability testing, implementation research alongside caregivers, clinicians, and digital health experts.<\/p>\n<\/div><\/div><\/div> PoPPc aims to prioritize caregiver well-being as a core component of paediatric pain care. By integrating digital health solutions specifically addressing caregiver health and well-being, into routine health care, PoPPc seeks to reduce caregiver stress and burnout, improve family functioning, and enhance child health outcomes.<\/p>\n Our vision is to create a scalable, inclusive, and evidence-based platform that ensures all caregivers\u2014regardless of location or background\u2014have access to the support they need, when they need it\u200b.<\/p>\n<\/div><\/div><\/div> PoPPc is led by Dr. Nicole Pope in collaboration with Dr. Jennifer Stinson, parent partners with lived experience and a multidisciplinary team of experts in paediatric pain, digital health, and caregiver advocacy.<\/p>\n Our research partners include leading Australian and Canadian institutions, ensuring a global perspective on digital caregiver support. The project is backed by a strong network of clinicians, digital health researchers, organizational partners (‘SKIP’, ‘Child Unlimited’), and caregivers with lived experience to ensure its real-world relevance and impact\u200b.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div> Mapped 73 studies on virtual caregiver support and identified potentially relevant, evidence-based resources to integrate into PoPPc.<\/p>\n We generated an Evidence and Gap Map from this review and revealed a lack of interventions addressing caregivers’ own health needs, including mental well-being, pain management, and systemic support.<\/p>\n<\/div><\/div><\/div><\/div><\/div> In-depth interviews with 32 caregivers across Australia and Canada highlighted emotional distress, social isolation, role strain, and barriers to accessing tailored support. These insights directly informed PoPPc\u2019s co-design, accessibility, and content strategy.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div> PoPPc\u2019s research findings have been published in peer-reviewed journals, contributing to the global evidence base on caregiver-targeted digital health interventions. Explore our latest publications and the Evidence and Gap Map, which visualizes gaps in existing support solutions.<\/p>\n[Coming Soon!]\n<\/div><\/div><\/div><\/div><\/div><\/div> Are you a caregiver, researcher, health-care provider, or organization interested in partnering with PoPPc?<\/i><\/strong><\/p>\n PoPPc actively engages caregivers, clinicians, and digital health experts to co-design the platform. <\/span>Explore opportunities below for collaboration, research studies, and digital health integration.<\/span> Collaborate on cutting-edge digital health research to improve caregiver support. Connect with us for partnership opportunities and ongoing studies.<\/p>\n<\/div><\/div><\/div> Integrate PoPPc into your practice to enhance caregiver well-being. Stay informed about implementation strategies and clinician resources.<\/p>\n<\/div><\/div><\/div> Your voice matters! Participate in co-design workshops, usability testing, or advocacy efforts to help shape PoPPc.<\/p>\n<\/div><\/div><\/div>How is PoPPc being developed?<\/h2><\/div>
What does PoPPc aim to do?<\/h2><\/div>
<\/span><\/div><\/div><\/div>Mission & vision<\/h2><\/div>
Research & evidence<\/h2><\/div><\/div><\/div>
PoPPc Team<\/h3><\/div><\/div>
Scoping review<\/h3><\/div><\/div>
Qualitative needs assessment<\/h3><\/div><\/div>
Publications<\/h3><\/div><\/div>
Opportunities to participate<\/h2><\/div>
\n<\/i><\/strong><\/p>\n<\/div><\/i><\/i><\/span>For researchers<\/span><\/a><\/h3><\/div>
<\/i><\/i><\/span>For health-care providers<\/span><\/a><\/h3><\/div>
<\/i><\/i><\/span>For caregivers<\/span><\/a><\/h3><\/div>
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<\/span><\/div><\/div><\/div>![\"A](\"https:\/\/lab.research.sickkids.ca\/iouch\/wp-content\/uploads\/sites\/33\/2025\/03\/Nicky-e1742398731682.png\")
<\/a><\/span><\/div><\/div><\/div>![](\"https:\/\/lab.research.sickkids.ca\/iouch\/wp-content\/uploads\/sites\/33\/2025\/05\/Screenshot-2025-05-28-at-9.40.57\u202fAM.png\" "\\"Screenshot")
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