{"id":2124,"date":"2022-10-20T15:06:40","date_gmt":"2022-10-20T15:06:40","guid":{"rendered":"https:\/\/lab.research.sickkids.ca\/dimaras\/?page_id=2124"},"modified":"2024-07-18T18:46:28","modified_gmt":"2024-07-18T18:46:28","slug":"information-for-patients","status":"publish","type":"page","link":"https:\/\/lab.research.sickkids.ca\/dimaras\/research\/biobank\/information-for-patients\/","title":{"rendered":"Information for Patients"},"content":{"rendered":"<h4><strong><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW254443504 BCX0\">Biobank Referral Process<\/span><\/span><\/strong><\/h4>\n<p><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW254443504 BCX0\">Patients are\u00a0<\/span><\/span><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW254443504 BCX0\">initially\u00a0<\/span><\/span><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW254443504 BCX0\">identified by the direct healthcare team responsible for their care, who can then discuss the option of donation of s<\/span><\/span><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW254443504 BCX0\">pecimens to the biobank<\/span><\/span><span class=\"TextRun SCXW254443504 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW254443504 BCX0\">.<\/span><\/span><span class=\"EOP SCXW254443504 BCX0\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">When s<\/span><span data-contrast=\"auto\">pecimens<\/span><span data-contrast=\"auto\">\u00a0arrive into the\u00a0<\/span><span data-contrast=\"auto\">SickKids Department of Ophthalmology and Vision Sciences Biobank<\/span><span data-contrast=\"auto\">, they are\u00a0<\/span><span data-contrast=\"auto\">de-identified\u00a0<\/span><span data-contrast=\"auto\">and given a unique reference number<\/span><span data-contrast=\"auto\">, protecting the privacy of the donor<\/span><span data-contrast=\"auto\">.\u00a0 Only relevant clinical information is released to researchers.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<h4><strong>Withdrawing Consent<\/strong><\/h4>\n<p><span data-contrast=\"auto\">Patients who donate tissue samples to the Biobank<\/span><span data-contrast=\"auto\">\u00a0are free to withdraw their consent at any time, without giving a reason<\/span><span data-contrast=\"auto\">.\u00a0<\/span><span data-contrast=\"auto\">Withdrawal<\/span><span data-contrast=\"auto\">\u00a0of\u00a0<\/span><span data-contrast=\"auto\">consent will<\/span><span data-contrast=\"auto\">\u00a0not affect\u00a0<\/span><span data-contrast=\"auto\">their clinical<\/span><span data-contrast=\"auto\">\u00a0care<\/span><span data-contrast=\"auto\">\u00a0or legal rights in any way. Withdrawal of consent can be arranged by contacting\u00a0<\/span><span data-contrast=\"auto\">SickKids Department of Ophthalmology and Vision Sciences<\/span><span data-contrast=\"auto\">\u00a0Biobank. There is no time limit associated with withdrawal of consent and donors are free to withdraw their consent at any time. If consent is withdrawn,\u00a0<\/span><span data-contrast=\"auto\">the\u00a0<\/span><span data-contrast=\"auto\">Biobank will arrange for the appropriate disposal, where possible, of any samples\u00a0<\/span><span data-contrast=\"auto\">still remaining<\/span><span data-contrast=\"auto\">. Clinical data associated to the participant will also be removed from the Biobank database.<\/span><\/p>\n<h4>Thank You!<\/h4>\n<p><span data-contrast=\"auto\">We are very grateful to all those who have donated\u00a0<\/span><span data-contrast=\"auto\">specimens<\/span><span data-contrast=\"auto\">\u00a0to\u00a0the\u00a0SickKids Department of Ophthalmology and Vision Sciences Biobank<\/span><span data-contrast=\"auto\">, as these donations help us\u00a0<\/span><span data-contrast=\"auto\">learn more about vision and eye health.<\/span><span data-ccp-props=\"{\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Biobank Referral Process Patients are\u00a0initially\u00a0identified by the direct healthcare team responsible for their care, who can then discuss the option of donation of specimens to the biobank.\u00a0 When specimens\u00a0arrive into the\u00a0SickKids Department of Ophthalmology and Vision Sciences Biobank, they are\u00a0de-identified\u00a0and given a unique reference number, protecting the privacy of the donor.\u00a0 Only relevant clinical information  [&#8230;]<\/p>\n","protected":false},"author":99,"featured_media":0,"parent":2058,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2124","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.0) - 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