The Canadian Retinoblastoma Patient Engagement Strategy

///The Canadian Retinoblastoma Patient Engagement Strategy
The Canadian Retinoblastoma Patient Engagement Strategy2018-07-30T19:30:05+00:00

A National Strategy

The Canadian Retinoblastoma Patient Engagement Strategy was developed to:

  1. Share research results with people affected by retinoblastoma (e.g., survivor, the immediate family of someone diagnosed with retinoblastoma etc.);
  2. Include a large diverse group of people affected by retinoblastoma in research; and
  3. Promote research that is created and led by people affected by retinoblastoma.

This strategy is led by the Canadian Retinoblastoma Research Advisory Board (CRRAB). For more information about CRRAB, please watch the following video. (Note, the priority setting project described in the project is now complete. Please click here for more information.)

More information will be available soon about our upcoming 3rd Annual Canadian Retinoblastoma Research Advisory Board Meeting. Save the Dates NOW! January 26th and 27th 2019 in Toronto, Canada.

CRRAB was created December 2016 and general membership includes people affected by retinoblastoma (e.g., survivors, the immediate family of someone diagnosed with retinoblastoma etc.), clinicians, allied healthcare providers, researchers, patient engagement experts and policymakers.

Logo for the Canadian Retinoblastoma Research Advisory Board where DNA strand makes two people, one with unilateral retinoblastoma.