Patient Engagement – Focus Groups

///Patient Engagement – Focus Groups
Patient Engagement – Focus Groups2018-12-17T15:40:15+00:00

Have you been affected by retinoblastoma?
Are you interested in research?

To take part in this study, individuals must be:

  • A retinoblastoma survivor or parent of someone diagnosed with retinoblastoma;
  • 6 years of age or older; and
  • A resident of Canada.

What’s the purpose?
The purpose of this study is to gather information about what treatment outcomes are meaningful, valuable and important to retinoblastoma survivors and their families. This information will help us develop outcome measures to be used in future research, to ensure we are evaluating treatments in a manner consistent with what patients value.

What’s involved?
If you are eligible, you will be invited to complete a brief survey and then participate in a focus group. For children, parents may be asked to complete the survey on their behalf. The focus group is a discussion, lasting up to 90 minutes, involving up to 10 participants. Focus groups will be conducted separatley for 6-9 year olds, 10-13 year olds, 14-17 year olds, and adults.

Who’s leading this?
Dr. Helen Dimaras, a scientist from The Hospital for Sick Children in Toronto, is leading this study.

To participate, please click:
Permission to Be Contacted About a Retinoblastoma Focus Group.

For more information:
Email: retinoblastoma.research@sickkids.ca
Call: 416-813-7654 Ext:223001

                              The official twitter account for The Hospital for Sick Children (SickKids) profile picture.